干旱区生态环境知识资源中心(Arid): Uveitis Registries - A Digital Tool for Patient Care, Education, Research, and Collaboration

Arid

DOI	10.1080/09273948.2022.2140062
	Uveitis Registries - A Digital Tool for Patient Care, Education, Research, and Collaboration
	Zhang, Zheting; Sheng, Sean Ng Ming; Kempen, John H.; Fabiani, Claudia; Arora, Atul; Gupta, Vishali; Tsui, Edmund; Cimino, Luca; Symes, Richard J.; Dell, Jennifer; Finger, Robert P.; Heinz, Carsten; Agrawal, Rupesh
通讯作者	Agrawal, R
来源期刊	OCULAR IMMUNOLOGY AND INFLAMMATION
ISSN	0927-3948
EISSN	1744-5078
出版年	2023
卷号	31 期号:9 页码:1859-1869
英文摘要	Purpose Clinical registries are increasingly important in research and clinical advancement. This review explores and compares current uveitis registries and recommends future directions on how uveitis registries can complement one another for synergistic effect and benefit. Methods From a systematic search, 861 citations were screened for longitudinal, non-interventional, and multicenter uveitis-specific registries. Additional registries were identified via consultations with uveitis experts. Characteristics of all registries were analyzed and compared. Results Four registries were identified: Treatment Exit Options for Non-infectious Uveitis, AutoInflammatory Disease Alliance International Registry, Ocular Autoimmune Systemic Inflammatory Infectious Study, and Fight Uveitis Blindness!. Despite certain differences, these registries have the overarching goal of collecting large quantities of real-world, high-quality patient data to improve the understanding of uveitis. Conclusion The four uveitis registries share similar goals and collect clinical data from overlapping geographical regions. There is vast potential for collaboration, including data sharing to further augment datasets for analysis.
英文关键词	AIDA FUB OASIS registry TOFU uveitis
类型	Review
语种	英语
收录类别	SCI-E
WOS记录号	WOS:000878880400001
WOS关键词	RANDOMIZED CONTROLLED-TRIALS ; STANDARDIZATION ; EPIDEMIOLOGY ; NOMENCLATURE ; METAANALYSIS ; ADALIMUMAB
WOS类目	Ophthalmology
WOS研究方向	Ophthalmology
资源类型	期刊论文
条目标识符	http://119.78.100.177/qdio/handle/2XILL650/397934
推荐引用方式 GB/T 7714	Zhang, Zheting,Sheng, Sean Ng Ming,Kempen, John H.,et al. Uveitis Registries - A Digital Tool for Patient Care, Education, Research, and Collaboration[J],2023,31(9):1859-1869.
APA	Zhang, Zheting.,Sheng, Sean Ng Ming.,Kempen, John H..,Fabiani, Claudia.,Arora, Atul.,...&Agrawal, Rupesh.(2023).Uveitis Registries - A Digital Tool for Patient Care, Education, Research, and Collaboration.OCULAR IMMUNOLOGY AND INFLAMMATION,31(9),1859-1869.
MLA	Zhang, Zheting,et al."Uveitis Registries - A Digital Tool for Patient Care, Education, Research, and Collaboration".OCULAR IMMUNOLOGY AND INFLAMMATION 31.9(2023):1859-1869.