干旱区生态环境知识资源中心(Arid): No child left behind: Building a comprehensive sickle cell disease care oasis in the Lake County, Indiana care desert

Arid

DOI	10.1002/pbc.29619
	No child left behind: Building a comprehensive sickle cell disease care oasis in the Lake County, Indiana care desert
	Brown, Leticia C.; Hampton, Kisha C.; Bloom, Ellen M.; Lawson, DeAuntae; Cooper, Sarah H.; Meier, Emily Riehm
通讯作者	Meier, ER
来源期刊	PEDIATRIC BLOOD & CANCER
ISSN	1545-5009
EISSN	1545-5017
出版年	2022
卷号	69 期号:8
英文摘要	Background Sickle cell disease (SCD) leads to end-organ damage and shortened life expectancy. The second highest incidence of SCD in Indiana is in Lake County, but until 2017, there was no SCD expert within 65 miles. The Indiana Hemophilia and Thrombosis Center (IHTC) developed the Sickle Care coordination OutReach and Education (SCORE) program in 2017 to bring high-quality, guideline-based care to children with SCD. Procedure The St. Vincent IRB deemed this retrospective analysis of SCORE clinic care from 2017 to 2020 exempt. Data on the number of transcranial Dopplers (TCD) performed, HU dosing escalation, and vaccine rates were collected along with the number of school and home visits completed. Results Fifty-three children, adolescents, and young adults completed 288 SCORE clinic visits during the study period; over 75% completed at least three clinic visits. Mean HU dose increased significantly with SCORE clinic care. TCD screening rates increased every year starting in 2018 through 2020 when we added local care coordination. One hundred seventy-three vaccines were administered in SCORE outreach clinics. The PPSV23 vaccines had a 100% acceptance rate, and seasonal influenza had a 75.8% acceptance rate. Conclusion Access to care coordination services and local hematology specialty care alleviates barriers to care and enables comprehensive SCD care delivery to children in need. Prior to the establishment of the SCORE clinic, 75% of children in Lake County were not receiving recommended stroke screening. The SCORE clinic model demonstrates feasibility and impact when delivering on the promise of high-quality care for children with SCD.
英文关键词	Access to care sickle cell disease transcranial Doppler
类型	Article
语种	英语
收录类别	SCI-E
WOS记录号	WOS:000783746200001
WOS关键词	ADOLESCENTS
WOS类目	Oncology ; Hematology ; Pediatrics
WOS研究方向	Oncology ; Hematology ; Pediatrics
资源类型	期刊论文
条目标识符	http://119.78.100.177/qdio/handle/2XILL650/393912
推荐引用方式 GB/T 7714	Brown, Leticia C.,Hampton, Kisha C.,Bloom, Ellen M.,et al. No child left behind: Building a comprehensive sickle cell disease care oasis in the Lake County, Indiana care desert[J],2022,69(8).
APA	Brown, Leticia C.,Hampton, Kisha C.,Bloom, Ellen M.,Lawson, DeAuntae,Cooper, Sarah H.,&Meier, Emily Riehm.(2022).No child left behind: Building a comprehensive sickle cell disease care oasis in the Lake County, Indiana care desert.PEDIATRIC BLOOD & CANCER,69(8).
MLA	Brown, Leticia C.,et al."No child left behind: Building a comprehensive sickle cell disease care oasis in the Lake County, Indiana care desert".PEDIATRIC BLOOD & CANCER 69.8(2022).