干旱区生态环境知识资源中心(Arid): Engaging Stakeholders in the Development of an eHealth Intervention for Cancer Symptom Management for Rural Residents

Arid

DOI	10.1111/jrh.12297
	Engaging Stakeholders in the Development of an eHealth Intervention for Cancer Symptom Management for Rural Residents
	Gilbertson-White, Stephanie 1; Yeung, Chi W.2; Saeidzadeh, Seyedehtanaz 1; Tykol, Hannah 1; Vikas, Praveen 3; Cannon, Ashley 4
通讯作者	Gilbertson-White, Stephanie
来源期刊	JOURNAL OF RURAL HEALTH
ISSN	0890-765X
EISSN	1748-0361
出版年	2019
卷号	35 期号:2 页码:189-198
英文摘要	Background Late-stage cancer diagnoses disproportionately occur in rural residents, frequently resulting in increased need for symptom management support with minimal access to these services. Oncology Associated Symptoms and Individualized Strategies (OASIS) is an eHealth symptom self-management intervention that was developed to provide cancer symptom self-management support and address this disparity. Purpose To engage stakeholders about the symptom management needs and concerns of patients with advanced cancer living in rural areas. Methods A 3-phased, mixed-methods design was used to (1) assess stakeholder needs and opinions; (2) develop a symptom self-management website; and (3) obtain usability feedback from potential users. Interviews with stakeholders (patients and clinic staff) from rural areas using a descriptive qualitative approach were analyzed; cross-cutting themes were identified; a symptom management web application was developed; and stakeholders completed a 12-item usability survey about the web application. Results Patients (n = 16) and clinical staff (n = 10) participated in phase 1. Three major themes were identified: symptom experience, symptom management, and technology. Through an iterative process using these results and evidence from the literature, the OASIS web application was developed. Usability testing with N = 126 stakeholders demonstrated that the web application is easy to use, contains relevant content, and has pleasing graphics. No differences were found among patients, family/friends, and staff. Both frequent and infrequent internet users positively evaluated the web application. Conclusions Rural stakeholders report significant symptom management needs, are interested in eHealth technologies, and perceived OASIS positively. Future research is needed to evaluate the feasibility, acceptability, and efficacy of OASIS.
英文关键词	cancer rural stakeholders symptom management technology
类型	Article
语种	英语
国家	USA
收录类别	SCI-E ; SSCI
WOS记录号	WOS:000462530900006
WOS关键词	SELF-MANAGEMENT ; PALLIATIVE CARE ; FEASIBILITY ; DELIVERY ; WOMEN ; URBAN
WOS类目	Health Care Sciences & Services ; Health Policy & Services ; Public, Environmental & Occupational Health
WOS研究方向	Health Care Sciences & Services ; Public, Environmental & Occupational Health
资源类型	期刊论文
条目标识符	http://119.78.100.177/qdio/handle/2XILL650/217314
作者单位	1.Univ Iowa, Coll Nursing, 50 Newton Rd,Room 444 CNB, Iowa City, IA 52242 USA; 2.Univ Iowa, Coll Educ, Iowa City, IA 52242 USA; 3.Univ Iowa, Holden Comprehens Canc Ctr, Iowa City, IA 52242 USA; 4.Howard Univ, Coll Arts & Sci, Washington, DC 20059 USA
推荐引用方式 GB/T 7714	Gilbertson-White, Stephanie,Yeung, Chi W.,Saeidzadeh, Seyedehtanaz,et al. Engaging Stakeholders in the Development of an eHealth Intervention for Cancer Symptom Management for Rural Residents[J],2019,35(2):189-198.
APA	Gilbertson-White, Stephanie,Yeung, Chi W.,Saeidzadeh, Seyedehtanaz,Tykol, Hannah,Vikas, Praveen,&Cannon, Ashley.(2019).Engaging Stakeholders in the Development of an eHealth Intervention for Cancer Symptom Management for Rural Residents.JOURNAL OF RURAL HEALTH,35(2),189-198.
MLA	Gilbertson-White, Stephanie,et al."Engaging Stakeholders in the Development of an eHealth Intervention for Cancer Symptom Management for Rural Residents".JOURNAL OF RURAL HEALTH 35.2(2019):189-198.